Oct 1, 2020
Topical Steroid Withdrawal (TSW) can cause chaos in the body. But it can also begin to affect one's emotional health, as well as their relationships.
My guest today, Kathryn Tullos is a Registered Nurse from Houston, Texas with a degree in Communications.
She is a wife and mom of 4 kids - ages 14, 12, 10, and 9. In mid-2013, her son suffered severely from Topical Steroid Withdrawal Syndrome (TSW) for 18 months, due to steroid creams prescribed for his eczema.
Kathryn threw herself into patient advocacy to try to help others navigate this often misunderstood iatrogenic disease. She joined the ITSAN board in 2015, helped write and relaunch the ITSAN website, and eventually became Executive Director.
She stepped down briefly in 2018, but she couldn’t stay away for long. Kathryn returned to ITSAN in October 2019 as President and CEO.
Join us as we discuss loss and trauma associated Topical Steroid Withdrawal Syndrome (TSW).
Have you experienced loss or trauma as a result of TRW? Let me know in the comments!
In this episode:
- What do people feel like they're losing as a result of Topical Steroid Withdrawal (TSW)?
- How to prepare before and after recovery
- How to handle it when it feels like no one understands what you are going through
- Can therapy help?
Quotes
“I think that we really underestimate the emotional toll that it takes on relationships during and after recovery.” [6:15]
“I think another misconception is when you're better, then everything goes back to normal and everything goes back to the way it was. And everything has shifted. Everything is different now. It's a totally new normal.” [16:27]
Links
Healthy Skin Show ep. 132: What is Topical Steroid Withdrawal? w/ Kathryn Tullos
Healthy Skin Show ep. 029: Is Trauma A Root Cause For Your Skin Rashes? w/ Dr. Keesha Ewers
Healthy Skin Show ep. 156: Recovering From Topical Steroid Withdrawal w/ Briana Banos
Healthy Skin Show ep. 096: Topical Steroid Withdrawal (A Personal Story) w/ Louise King